ABOUT US
Struggle Bus Family is a community for and about those with special needs. We talk about our struggles, strives and thrives, and more. Being a parent or caregiver for someone with special needs is HARD and you are not alone.
We are real and raw in our support.
We work through the sense of isolation and being overwhelmed. Foster a sense of solidarity, share techniques and advice that have helped us and our kids get through the daily struggles of life and achieve some pretty awesome things along the way.
OUR NEWSLETTER
Join our newsletter for support, resources, and a community that gets it. We’ll deliver encouragement, expert advice, and the latest Struggle Bus Family news straight to your inbox. Subscribe today!
YOUR HOSTS
Joni Chu
Host & Producer
Joni is a dad of five kids with an ultra rare disease and special needs advocate. Joni founded the Struggle Bus Family podcast to build a community for families, parents and caregivers of those with special needs where they could share real, raw and personal stories of common struggles and learn to thrive together.
Jess Daily
Co-Host & Content Guru
Jess is the mother of two boys, one with the same ultra-rare disease as Joni’s children. She brings the unique perspective of an adoptive mom to a child with special needs while navigating single parenthood with a full-time career. Her goal for this community is to help others in similar situations feel heard, valued, and seen.
REVIEWS FROM SUBSCRIBERS
I’m so grateful to be a part of our community!
Thank you again for having me and for sharing your stories.
It’s so validating to listen to!
– Savannah
I was listening to your latest podcast and when, I think Jess, start talking about the trauma of the “first ambulance” or keeping your child safe/alive, the constant level of alert… That really resonated with me. I was actually cleaning up the kitchen and I had to stop, I felt that knot in my throat to suffocate my tears but they started gushing down. Yes, the trauma. Because L is going to be 19 in less than two months, I buried in the depths of my memory a lot of traumatic events. Because we have to face continuous challenges, not only from L himself but also with local authorities (for schooling and funding) and with the NHS, it just never stops. We are on “war footing” all the time and that’s why I can only think in terms of small steps at the time. Not to mention the impact that all of this had on my daughters. We are happy now but to get here was a long and bumpy ride. Thank you for the podcast. I loved it!
– Ilaria
I love the bit about AAC!
R uses LAMP words for life and is using so much of it for functional communication at school and home. The babbling stage was definitely tough, but he’s like Eugene stringing together sentences – just a little out of order. His is actually in the shop right now getting a full work up. New battery, screen and LCD. Hopefully that’ll last a while
– Lisa
#STRUGGLE #STRIVE #THRIVE TOGETHER.
inquiries@strugglebus.family
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